Modified Motherhood

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special needs

Autism, Ehler-Danlos Syndrome

Natural Disasters – Ruminating on Special Needs

Natural disasters are kind of disastrous. Go figure. Having just gone through Hurricane Irma, and now reading this post from Kveller, and having disabled members in our family, it got me thinking about our preparations and readiness. We made it through Irma with no problems. We were lucky when so many others were not. But we were ready. At least, I think we were ready. Our home was shuttered up with metal hurricane shutters. We brought in the camping gear, because it doubles as a  ...

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Autism, Ehler-Danlos Syndrome

Special Needs, Smecial Needs

Raising independent kids in spite of their special needs. I feel like I spend a lot of time talking about this with other people, and then even more writing about it here.    I spent the other morning taking care of medical stuff. We need to get the Boy Scout Form C filled out for M for camp. While we were there I had to pick up the 504 information that E’s rheumatologist was supposed to send over. But there was nothing. We did get her official diagnosis papers, which I guess  ...

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